Callie in her new toy from Grandma & Grandpa Kohn. She's still a little small for it, but I think she liked it :)
Callie's new favorite thing to do is sucking on her fingers :)
Monday, January 28, 2008
Pictures
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Not much has been going on lately, so I thought I would just post some pictures. Scott left on Sunday and has arrived in Japan safely. Callie gets her first shots tomorrow, so wish me luck with that :)
Our family
Miss Callie
Ozzie
est. Jan 2008
Our family
Miss Callie
Ozzie
A little history on Callie:
Callie was diagnosed with Thrombocytopenia Absent Radius (TAR) Syndrome minutes after her birth. Thrombocytopenia means she has low blood platelets, and Absent Radius means she is missing the radius bone in both arms, making her forearms shorter than normal. Other than that she is a very happy and healthy little girl. (If you want to learn more about TAR please check out the links and personal websites of other kids with TAR below.)
Callie also had Positional Plagiocephaly, which, simply put, is flattening of one side of the head. She received a Doc Band, a corrective helmet, and wore it for five and a half months and it did an amazing job! Her head is almost completely round now and once her hair grows out it will be hard to tell that there is any flat spot at all.
Feel free to follow Callie's story as she grows and deals with the various medical issues that she faces. We know she is a strong girl and will be able to deal with anything that is thrown at her. Because of this she has turned us in to stronger parents than we could have ever imagined. She is an amazing blessing to us and I know we would not have our lives any other way!
You should write that down:
- Sept. 3, 2009: Callie started walking all on her own!
- Aug. 28, 2009: Callie stood up all on her own without holding on to anything or anybody!
- Aug. 22, 2009: Last day of bottles for Callie. We finally took away the night time bottle and she didn't even care!
- July 28, 2009: Callie took her official first steps!!! Three in a row, and then later that day she took four! Keep it up Callie!
- May 18, 2009: Callie walked behind a push toy all on her own today for the first time!!
- May 2, 2009: Callie climbed onto the couch all by herself today.
- April 10, 2009: Callie started cruising along the coffee table and now does it along the couch and the bathtub! We are getting closer to walking on our own!
- February 25, 2009: Callie started saying "wa wa" for water. It's not something I have been working on with her, she just stared saying it all on her own :)
- February 14, 2009: Callie has quite the vocabulary. She can make all sorts of animals sounds and says a few words. Her most recent word is Elmo, and she says it all the time, even when there is no Elmo in sight.
- January 21, 2009: Callie tries ranch dressing for the first time and really seems to like it.
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