Wednesday, January 23, 2008

Busy week

































Well, we have had a couple of appointments since my last post, so it has been a pretty busy week.

First of all, last weekend was our first night away from Miss Callie. Scott and I celebrated our third anniversary at the Four Seasons in Arlington and Scott's parents were so great to come stay at our house with Callie. Since she was still getting over her ear infection I thought they might have a tough time, but they said she did great. At least they offered to babysit again, so that is good :)

Monday we had a visit from the Physical Therapist from Early Childhood Intervention, which is a state run program that comes to your home. Callie was evaluated by the PT and will receive twice monthly physical therapy. We will work mostly on weight bearing in her legs and trunk strengthening for now. Callie still struggles with lifting her head up, but the PT gave us some good ideas to help with tummy time and she is already improving. The program works with the children until they are 3 years old, so that is great.

Tuesday was another visit to the Hematology clinic and Callie surprised us again. Her platelet count was at 35,000!!!!!! So, what we thought may have been a miss count on Friday was most likely correct and we were so excited. She has been doing so well that our next appointment isn't for two weeks, the longest we have gone without getting a check.

Today we met with the Geneticist that saw Callie in the hospital. She did a general evaluation of Callie and told us all her chromosomes were correct. She also told us that TAR is a genetic disorder that means both Scott and I have to have the TAR gene to pass it on, which is why it is so rare. She also told us there is a 1 in 4 chance of any additional children having TAR.

Scott leaves this Sunday to go to Japan, so we are slowly getting him ready. Callie and I turned in our passport applications yesterday so we will be prepared to join him in a couple of months. It will definitely be tough to adjust to life without Scott and we will miss him tons, but we will survive. That's the life of a baseball wife :)

1 love notes:

kkp1220 said...

Always the worst time of year when it starts up again. At least he has been around for the "tough" part. I am keeping you in my prayers. We are going to miss seeing you during spring:-(

Have fun in Japan!!

Kelsey